Well, today is Wednesday, the 30th of November, 2011.
Today is a day I've been both looking forward to and dreading in equal measure for a while now. Because I didn't really know or understand just what this day really meant. And I'm not sure I truly do, even now that I'm here. But I know it means something.
This has been a really huge year for me, for a number of reasons. Not only was it my final year of uni (for now) before I head off and begin teacher, but it was also the 21st year of my existence. Both of these things are huge milestones in anybody's lives (I imagine). But they've both been overshadowed to a large extent by the journey that began this day last year.
30th November, 2010. My mother's birthday, of all days. That was the day when I was first admitted to hospital for my leg. Obviously that wasn't the first day I was in pain, that had been going on for weeks. But it was the day I knew that this wasn't just a case of 'soft tissue damage'. They don't rush transfer you to another hospital for 'soft tissue damage'.
And so began the most challenging period of my (admittedly shortish) life to date. I can look back on that month in hospital with some sense of rose-tinted glasses, but the lenses are still a bit foggy. There were times where I broke down - as someone who carries himself stoically (or at least tries to), it's actually a little bit embarrassing to reflect on those moments. And I know it shouldn't be, I had every right to be upset. But I guess it's a chink in the armour, and for someone like me that's tough to deal with.
The hardest thing I've ever had to do was try to put on a happy face on Christmas Day because I didn't want to ruin what's supposed to be a joyous occasion for the people I love. It's tough when you see them sitting in a cramped up hospital room waiting around while you're getting a blood transfusion because you're too damn weak to sit up. Because even though you know you'd do the same thing for every single one of them without even a hint of hesitation, you don't wanna be the one who ruins Christmas.
Boy this is difficult.
I remember trying to learn to walk again, only to be sent back to square one over and over because they needed to go back in for more surgery. I remember being in excruciating pain simply trying to shuffle up the bed. I remember losing 10 kilos off my already slight frame, looking at myself in the mirror and seeing the reflection of a gaunt, pale ghost with long (reddish) hair. I remember memorising the meal menus because I'd been in there for so damn long. I remember having a permanent IV line implanted in my arm because I needed constant intravenous antibiotics which were dispelled for a weird device that looked like a used condom inside of a baby bottle. I remember being so thankful that it was cricket season, because most of the time I at least had something to watch. I remember fainting in the foyer of the hospital as I was being 'discharged' for the first time (before returning 2 days later because things had actually gotten worse). Luckily I can look back and laugh at that last one.
As hard as it was to go home, I was just so happy to be out of that place. And it got easier and easier as time went on. I became proficient on crutches, and developed a bunch of systems for getting around the house, up and down stairs, and just generally existing.
(It looks much cooler when she uses them)
And then finally it came time to go back to uni. And I had no idea whether or not I was actually going to be ready in time to get back. But somehow, the universe aligned itself in a way that all of my downtime this year happened on uni holidays.
I don't know if it was because I had more time on my hands, what with not being able to work, or if I just had greater focus this year because the units interested me, but this was the best year of uni I had (academically speaking). And it was just so reassuring to know that, at least my mind hadn't fallen apart with my body.
I had setbacks during the year. Not the least of which included fracturing my leg while on prac (without realising it was fractured until I had bone grafting surgery 2 weeks later). But from January 1st, I generally found myself charting a more positive trajectory, to get to the point where I am now. I may not be able to run, or bend my knee past 90-100 degrees. But just under a year ago I couldn't bend my knee past 30 degrees, or even sit up straight without passing out.
It's funny, looking back now, I can remember some of the things I achieved before this all happened. Like my previous blog talking about cricket, for example. I still remember this stuff, but I don't recall what it 'felt' like. The only image of myself that I have now is the one I know today, and everything that happened in the 20 or so years leading up to last year is basically a distant blur. More than being physically crippled, I think it's that disconnect from my 'self' that's been the hardest thing to deal with.
I can't help but feel like this whole experience has changed me profoundly as a person. And I'd like to think for the better, if only because it's comforting to think that I can take something positive from this experience. I actually think I've learned to become a more patient, accepting, kind, generous and generally more mature person over the past year. And I've actually got ample evidence to support that assertion, both anecdotal and concrete. And I definitely think I'm more resilient: I'd have to be, really. And whether or not these changes would have occurred without me becoming a cripple, I'll never really know. But they did happen, and that's for the better. And now this is where I stand.
Gosh, I know it's lame, but even being able to say "this is where I stand", and know that I can actually accomplish that is something I wasn't sure I'd be able to do just a year ago. And in truth, I don't know for certain what the future holds. Reading up on the disease, it actually seems quite possible that there could be recurrences or further complications. But I don't take for granted the stuff that I can do now. I still get a rush when I walk down the steep hill of my driveway to collect the mail, because I still remember when that seemed like an impossibility.
And I also don't take for granted the amazing people I have in my life. The friends who sent me well-wishes over text or Facebook or whatever, because that's what we do these days. Or the friends who came up to visit me and give me Donkey Kong and some Kit-Kats. But most importantly, the family who stayed with me every day, or who drove through a fucking cyclone to be with me on Christmas Day. The dad who would bring me some treat (usually white chocolate) and soft drink every day after work because he knew how much I loved them. And the mum who dropped everything for most of the year just to get me through. Because that's what families do. I kinda wish we celebrated Thanksgiving in Australia, because I know exactly what I have to be thankful for.
Yeah, today definitely means something. But then again, so does tomorrow.












